Lupus Erythematosus - ACKNOWLEDGEMENTS
Lupus: A Patient Care Guide for Nurses
and Other Health Professionals is
an update of Lupus Erythematosus:
Handbook for Nurses by Terri Nass, RN,
which provided health care professionals
with a comprehensive and detailed
review of lupus.
The National Institute of
Arthritis and Musculoskeletal and Skin
Diseases (NIAMS) is pleased to have had
the opportunity to update the Handbook
with the gracious permission of Ms. Nass.
Lupus erythematosus is a complex and
challenging disease that affects the
lives of many thousands of individuals
and their families.
emotional, and psychosocial aspects, this
disease requires multidimensional and
patient-centered treatment and support
This comprehensive guide
brings together information on a wide
variety of issues that health professionals
need to know about in order to provide
these treatment and support strategies
for their patients with lupus.
covers general background on lupus, new
advances in research, laboratory tests
used to diagnose and evaluate lupus,
care of the lupus patient, medications
used to treat lupus, psychosocial aspects
of lupus, and patient education and
A key element of the guide is that it
contains information useful to the whole
patient care team: nurses, physicians,
physical and occupational therapists,
social workers, and patients themselves.
Many people worked on this revision
to incorporate the immense knowledge
obtained over recent years on lupus and
its management and to create a readerfriendly
and useful book.
We wish to
thank all those who have played a role
in bringing this guide to fruition, in
particular the Task Force on Lupus in
High Risk Populations, which was led
for a time by Lawrence E. Shulman, MD,
PhD, the founding director of NIAMS,
and which contributed much to ensuring
that lupus remains in the public eye and
on the research docket.
We also appreciate the National Institute
of Nursing Research, NIH, for their
comments on and support of the Lupus
Guide. We thank the NIH’s Office of
Research on Women’s Health and Office
of Research on Minority Health (now
the National Center on Minority Health
and Health Disparities) for having
participated in the lupus task force and
for their generous support of the Lupus
Guide and of our work in lupus and
other research areas of mutual interest.
We appreciate the active role of the
Lupus Foundation of America (LFA) in
the task force.
Finally, we would like to acknowledge
the efforts of Jill Buyon, M.D., of NYU
Hospital for Joint Diseases; Michelle
Petri, M.D., M.P.H., of Johns Hopkins
University; and Dennis Gregory, M.D.,
Michael Ward, M.D., and Cheryl Yarboro,
R.N., all of NIAMS, in reviewing the
content of this revision.
We hope that nurses and other health
professionals across the country will find
this new guide informative and useful as
they work with people with lupus and
Source: National Institutes of Health, U.S.Dept of Health and Human Services