|INT'AL CLASS'N OF DISEASES | AIDS GLOSSARY | ANATOMY | DRUGS | USA STATS | CHINA STATS | GENOME DICTIONARY|
LUPUS ERYTHROMATOSUS A TO Z
SOURCE: National Institutes of Health, U.S.Department of Health and Human Services: Link to NIH
Living with Lupus: Developing Effective Coping skills
Many people with lupus go through
phases in which they feel that control
over their life is slipping from their own
hands into those of an unpredictable
and unpleasant disease. This sense
of powerlessness can occur not only
during flares but also during periods of
recuperation and remission. It forces the
patient to choose between two options.
This choice may be made many times
during the course of the illness.
People with lupus need to accurately assess their pain and fatigue levels and understand how changes in these levels will affect their ability to work, play, and carry out activities of daily living. Health professionals can help patients develop an effective self-management program that sets out achievable goals, realistically paces activities, and avoids over commitments.
Help Patients Gain Control Medically
Doctors, nurses, and other professionals involved in lupus care can teach patients about many medical aspects of the disease, such as warning signs of an impending flare (the patient may have much to contribute to this discussion), medication use, possible side effects, and warning signals for contacting medical personnel. Nurses can also teach strategies for communicating with the health care team. This knowledge and these strategies will help the patient gain a sense of increased medical control over the disease. The Patient Information Sheets can help with this process.
Source: National Institutes of Health, U.S.Dept of Health and Human Services