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LUPUS ERYTHROMATOSUS A TO Z

SOURCE: National Institutes of Health, U.S.Department of Health and Human Services: Link to NIH


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After the Diagnosis

Patierits will certainly experience a sense of relief once their condition is finally given a name and a tangible identity. At the same time, other emotions - anger, fear, depression, confusion, grief - may also surface. Patients may express some of the following sentiments:

    "At last - a diagnosis! Now I know why I feel the way I do."

    "Why me?"

    "I'll never be able to make plans, because I don't know what tomorrow will bring."

    "I feel guilty for having lupus and for all the trouble it's causing my family."

    "Should I tell everyone or keep it quiet?"

    "Will I lose my job?"

    "I hate this disease. It's destroying my life and my family."

    "I'm scared."

    "Will I die soon?"

    "Will I ever be able to have children?"

    "How will we pay all these medical bills?"
After the diagnosis, some patients will have an insatiable desire for information about the disease; others may need to work through intense emotions before they can come to grips with their illness and begin to cope productively.

The rapport that the health professional has established with the patient can now be used to provide the patient with information, resources, and an accepting atmosphere in which to adjust emotionally.

This rapport can set a foundation of hope.



























Source: National Institutes of Health, U.S.Dept of Health and Human Services

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