For the patient with lupus, the emotional
aspects of dealing with a chronic disease
can be overwhelming.
They can also
make the patient feel isolated from
friends, family, and coworkers. Grief,
depression, and anger are common
reactions of patients with lupus.
Those with lupus and their families deal
with the disease in strikingly different
Managing the ups and downs of the
disease may put strains on relationships
Younger patients may fail
to assert their independence or develop
a life away from home if they feel they
cannot cope with their disease on their
Family members are often confused
and frightened over the changes they
They need guidance on and
constructive suggestions for helping the
Children of people with lupus,
particularly those too young to really
understand the disease, may need special
help in coping with their parent's illness.
It is in these areas that the patient,
family, and support systems need to be
assessed, encouraged, and guided so
that they work together as a team.
allowing the patient and her or his family
the time and freedom to move through
different emotional phases without
criticism and unrealistic expectations,
you will facilitate acceptance of the
The health professional can
have a major role in helping a patient
adjust, and can help with referrals to a
social worker, counselor, or community
resource, if needed.
Psychosocial Aspects of Lupus, discusses
these issues in more detail.
Source: National Institutes of Health, U.S.Dept of Health and Human Services